Sponsorship

(Jan 20, 2025)

Kidneys for Life Organization (https://kidneysforlife.org/) is Registered UK Charitable Organization (Manchester, UK).  The Fabry Disease Update Series is sponsored by KFL and is governed by its bylaws.  KFL provides direct financial management and support for the Update series. Copies of the governing Terms of Reference are available at this link bylaws.

COVID: The 2026 Update on Fabry Disease will be organized with approximately 150 Face to Face (FTF) participants . All local and national COVID restrictions will be in force at the venue

Sponsors will be allocated a defined number of FTF participants, as indicated in the table below.  In addition, any employee of the sponsor who presents a poster at the meeting will be allocated a FTF registration separate from the sponsors FTF participants shown in the table.  These poster presenters will be assessed a registration fee and will not be eligible for a travel bursary. Sponsors are encouraged to pre-register for additional employees who are not on the commercial arm of the company. These additional employees will be accommodated as late-registrants on a space available basis. There is no charge to pre-register, but this does not constitute actual registration. Registration is by invitation only.

There will NOT be any opportunities for the sponsors to engage in commercial or marketing activities at the venue (e.g., booths, brochures, exhibits). Sponsors may wish to organize meetings with some of the assembled experts, but these meetings cannot take place during the scheduled presentations of the Update on Fabry Disease program. In the event a Sponsor organizes such a meeting, the Sponsor must pay all of the travel expenses of the participants. If those participants are official participants in the Fabry Update meeting, their travel bursaries will be adjusted to reflect the actual costs of attending the Fabry Update Meeting.